Showing posts with label Migraine Associated Vertigo. Show all posts
Showing posts with label Migraine Associated Vertigo. Show all posts

Tuesday, September 2, 2014

Heal your Headache - Migraine Diet Update

I wanted to share an update to my post entitled "Migraine Associated Vertigo" to give you an update on my experience with the migraine diet from the book, Heal your Headache by Dr. Buchholz.  (He seems to believe that even dizziness/vertigo and the host of other symptoms I experience are migraine related and that by following the diet laid out in his book, they symptoms should decrease or cease all together.  I wish!)

I followed this diet for 6 weeks (I remember reading in the book somewhere, but now I can't find it, to give it 6-8 weeks and then up to 4 months symptom free before introducing "trigger" foods back into the diet). Some may argue I should have tried it longer, but I will tell you why I did not. I was doing pretty well before starting the diet. My symptoms were troublesome and chronic (as in, 24/7), but the vestibular therapy gave me a lot of relief. After starting the diet, I actually got worse. As someone who got actual headaches only once and a while (a few a month, if that), I started getting them at least 3x per week. They were massive headaches too. Also, out of nowhere, I experienced the worst dizziness I had ever experienced since this whole illness began in January (up until starting the diet, my dizziness had been predictable, but this was a major turn for the worse.  I blogged about that experience here). This happened 3 times and actually set me back in vestibular therapy. I had to go back to my most basic exercises, whereas before the diet I had gotten pretty advanced. My life was pretty manageable, feeling about 80-90% better most days before the diet, but after the diet and this major episode of horrendous vertigo, I was back to being practically bed ridden. I couldn't drive for weeks, whereas before I could drive just fine (as previously noted, my dizziness almost always fells better while I in motion and never bothered me while driving up to this point). I actually thought that perhaps the diet WAS working and this was my brain's way of healing and adjusting, so I decided to continue on. However, my health overall just felt like it was starting to decline.

Since there seems to be some sort of trigger food in everything, I started relying too heavily on carbs & sugar. I know this is my own fault, but with a diet so limited, day old bread was pretty easy to reach for when I didn't know what else to eat. I couldn't even follow the sample diet in the book. Dr. Buchholz suggests roast beef sandwiches (what kind of roast beef, surely not processed deli meat??), tuna salad (what about the mayo that has vinegar and lemon juice in it?), grilled cheese sandwiches (I can't find preservative free cheese around here). As for his sample breakfasts, though it sounds good, it's just not healthy to live on waffles with maple syrup, blueberry muffins and bagels with cream cheese every day (not that I could find a preservative free cream cheese anyway). Dinner was the easiest because of Heidi Gunderson's Migraine-Free Cooking cookbook, but I found breakfast and lunch to be limited. I can't remember the last time I ate a decent salad. Although Dr. Buchholz says white wine vinegar is "allowable" in small amounts, I can't use it because of the sulfites. The problem is that now I can't use avocados, lemon juice or yogurt either to make my own salad dressing with those. Eating out was not even an option. Don't get me wrong, if this diet helped me, I would gladly never eat out another day in my life, but it did not.

I think the stress of following the diet and worrying about what food might have a trigger in it caused me to feel much worse too. I'm not saying others with a vestibular disorder shouldn't try, I'm just sharing you my experience. I would personally try anything (that's natural like a diet) and now I can say I did. Do I think it would have "worked" if I tried the diet longer? No, not at all. I have actually been feeling much better now that I stopped following it.  I don't mean that my dizziness is much better, but I feel better overall with more strength, energy and peace of mind and that, in itself, makes the symptoms more bearable and less debilitating. 
 
I do know that before this diet, I had my eyes on the Lord more often, looking to Him to get me through each day in trust that He would.  After starting the diet, I began looking to myself and this diet for help.  It became an obsession of sorts, especially when trying to avoid all "trigger foods". I am genuinely happy for those this diet worked for and if it has helped you and your vestibular disorder, praise God!!  I wish it had worked for me too, but the Lord has other plans for me.
 

Friday, July 18, 2014

Migraine Associated Vertigo (MAV)

It's been a while since I last posted and I wanted to share where I'm at right now with my illness.

I posted several times before about my vestibular disorder that I've been living with since January. My doctor has no idea what's causing it and lumped me into the "it must be uncompensated Labyrinthitis" group. She knows for sure it's not Meniere's Disease, but other than that, it's a mystery. I've been successfully doing vestibular rehabilitation therapy since March. It has helped reduce my symptoms dramatically, although I still have major set backs any time the pressure changes or I get my monthly cycle. 

I shared my story on a few different dizzy forms the past several months and got responses from some very nice women who suggested I might have Migraine Associated Vertigo. I had read about it in the past during my research, but never explored it in depth.  One of the women recommended a book called "Heal your Headache: The 1-2-3 Program for taking control of your pain" by David Buchholz, MD.  I ordered the book from my library and went to pick it up before my vestibular therapy appointment yesterday morning. While at my appointment, I talked more about my symptoms with my therapist.  I didn't mention anything about the book. She said I reminded her a lot of another one of her patients who has Migraine Associated Vertigo. Apparently she had seen some top doctors at John Hopkins University who diagnosed it. She gave me a hand out to read and suggested I get a copy of Heal your Headache.  I couldn't believe it; I told her I just got the book from my library!  I often look for confirmations from the Lord that He's telling me something because I don't want to seek any kind of treatment outside of His will, believing wholeheartedly that He will make good on His promise to heal me because His word is true, always. I took this recommendation by my therapist as a confirmation since I had been praying for Him to use her and guide her in a mighty way regarding my treatment.  I had also been praying for His wisdom, knowledge and guidance.  

I read through the entire book yesterday. I just could not put it down. All my symptoms were described in the book as migraine related: head pain & pressure, sinus pressure, ear pain and fullness, dizziness! I always knew migraines could cause visual symptoms, not just intense headaches, but I had no idea they could cause vestibular (and a whole host of other!) problems too.  I used to get horrible migraines when I was younger, the kind that cause horrendous head pain, light sensitivity, nausea and vomiting. I only had a handful and then they went away, though I struggled since then on and off with dizziness.  Could it be that what I'm experiencing is migraine related?

I'm going to follow the diet recommended in the book, eliminating all common migraine "triggers" to see if it helps with my symptoms.  If it does, praise God!  If it doesn't, praise God! I thank Him for this opportunity to give something a try, but if this is not something that will help me, then I trust Him to bring it to pass in His time and in His way.  

I highly recommend this book though.  It's an excellent read and a real eye opener. Any doctor that challenges the status quo is okay in my book.   

If you've read the book or tried the diet, I'd love for you to share your experiences! For more information on recipes related to this specific diet, the follow links are highly beneficial:

Migraine-Free Cooking (a blog with recipes based on the book)

Migraine-Free Cooking (recipe book based on Heal your Headache)

I ordered the Migraine-Free Cooking book today and look forward to receiving it!  I spent the day clearing my cupboards of any triggers.  My loss is the food pantry's gain!

UPDATE: I tried the Heal your Headache diet for 6 weeks and then I called it quits.  For the entire update and all of the details, please refer to this post: "Heal your Headache - Migraine Diet Update".  In a nutshell, it did not work for me.

 

Friday, April 4, 2014

Labyrinthitis and Vestibular Rehabilitation Therapy

So, I finally got my diagnosis as to why I've been so dizzy on a daily basis for almost 2 months now.  My ENT sent me for a test called an ENG which revealed a 28% unilateral vestibular weakness in my right ear. He's not exactly sure what caused it but thinks it was most likely a virus that attacked my inner ear. He encouraged me to continue with vestibular rehabilitation therapy (VRT) and I'm in my third week of that therapy now.  

Update: I got a second opinion a while back and was diagnosed with uncompensated labyrinthitis (a form of unilateral vestibular weakness).  Truth be told though, she didn't really know for sure what I have. Apparently, I don't meet all the criteria for any vestibular disorder, so this was her best guess as its the category I most closely fall into to.  It's been over 2 months since this post and I continue to struggle with the dizziness, although it's getting better with my vestibular therapy!  I have days where I feel 80-90% better and days where I'm back in bed.  I'm plugging along though, patiently waiting for my healing from the Lord!  "For the vision [of my healing] is yet for an appointed time, but at the end it shall speak, and not lie: though it tarry, [I will] wait for it; because it will surely come, it will not tarry." (Habakkuk 2:3)

Update #2: I now believe I may suffer from Migraine Associated Vertigo. I don't know for sure, but it certainly sounds possible and given the fact that my doctor isn't sure what's causing my problem, I'm going to try the MAV diet as recommended in "Heal your Headache" by David Buchholz, MD.  For the fully story, I posted about this here

For those not familiar with vestibular rehabilitation (I certainly wasn't before having such issues!), it's like physical therapy for the balance system. It's a series of exercises that actually provoke my dizziness so the brain can compensate for the inner ear damage. I do a lot of exercises with my therapist that include balancing on one leg with my eyes closed (on both solid ground as well as balance foam), standing heel to toe with arms crossed and eyes closed, turning my head quickly from side to side and up and down while focusing on a letter on the wall, etc. It may not sound challenging but it is HARD! Because of my inner ear imbalance, my system relies heavily on my eye sight right now so any time I have to close my eyes I'm pretty much a fall waiting to happen. 


My homework includes walking up and down my hallway looking up/down, right/left, diagonal up/diagonal down, and even adding half turns into my walks.  Those are the worst!  I've avoided turning around as much as possible so having to force myself to do it has been difficult.  Now that I'm almost done with my third week of therapy, I do find that it's starting to help.  I no longer react as strongly to the exercises, meaning the dizziness doesn't get provoked as bad. The one move I still struggle with is those turns but I look forward to mastering those too. 

Now that I know the exact illness the Lord is going to heal me of (see His promise to me here), I will continue to walk by faith through my therapy exercises and in life, and wait on His perfect timing!

Has anyone else walked through vestibular therapy or suffered from vestibular dysfunction? I'd love to hear from you so we can encourage one another in the Lord!

For more information on Vestibular Rehabilitation Therapy, see the link below:
http://vestibular.org/understanding-vestibular-disorder/treatment/treatment-detail-page