Saturday, July 8, 2017

Oh, My Soul

Eleven days after my last post, my mother passed away after a week long stay at the hospital. I don't even know how to put into words how deeply I'm grieving.  It came as a complete surprise. 

In my last post, I had mentioned my Lyme Disease relapse, which was confirmed by my Lyme doctor just one day before my mother entered the hospital. I had managed about 2 1/2 weeks of antibiotics and all of my other herbal medications and supplements before throwing in the towel. It was just too much to keep up with while living in the hospital ICU. Thankfully, I somehow no longer have any obvious Lyme symptoms, but my body and mind are feeling the strain of emotional stress once again. As I talked about recently, my grandmother also passed away at the end of April.  She was my mother's mother, and the two of them were like two peas in a pod. I guess they were never meant to be apart for long.

Going through this experience with my mother and all that happened to her, ending in her passing, has really challenged my faith. I still believe, and I still know where my greatest and ultimate healing and comfort comes from, but it's hard. I get angry, I question, I feel depressed and anxious and utterly crushed, but as Peter once asked Jesus, "Lord, to whom else shall [I] go"? (John 6:68)

The Lord has given me the following verses loud and clear, over the past few weeks, but I struggle to rest in the truth of what they say verses my overwhelming grief, sadness, confusion, heartache and disappointment: 

"When you go through deep waters, I will be with you. When you go through rivers of difficulty, you will not drown." (Isaiah 43:2)

This was the scripture in my devotional the day after my mother passed away. I knew it was especially for me that day because I had been praying just before I read it, that I felt like I was going to drown in my grief. Every time I feel that way, I think of this scripture.

"And we know that God causes all things to work together for good to those who love God, to those who are called according to His purpose". (Romans 8:28)

I'll be honest, I cannot possibly fathom the good that will come of this. It's what He promises, and His Word is true, but for now I'll just leave it at that. 

"Trust in the Lord with all your heart, and lean not on your own understanding" (Proverbs 3:5)

This one is special to me because it was my mother's favorite verse, and she asked me to make a painting of it for her, which I gave to her for her birthday this year.  It has come up in many different meaningful ways since her passing. The events leading up to her passing away were traumatizing beyond any experience I've had, and lets just say if ever there was a time for me to lean not on my own understanding, this would be it. 

If you're reading this today, I ask that you please keep me and my family in prayer. We have a long road of healing ahead.  I love this song by Casting Crowns, Oh, My Soul, which I feel right now speaks deeply into my life. I pray you take a listen and find encouragement for your own life, that one day He will make beauty from our ashes. (Isaiah 61:3)


Sunday, June 11, 2017

Lyme Disease, we meet again!

The picture posted here has nothing to do with my blog post. I just thought I'd share one of the latest paintings from my Etsy shop, LivingWordDecor. I made it for a friend's birthday and liked it so much that I decided to list it for sale!

So, as my post suggests, I am now in what I believe to be a relapse of Lyme disease. Darn, I was doing so well! As you may know from previous posts, my grandma lived with me and my husband, and I was her full-time caregiver. The past 6 months have brought unending amounts of emotional stress for me in regards to her and her health. She was hospitalized and put on hospice to die, only to recover. She developed dementia, which meant I lost a lot of sleep as she yelled out for me on countless nights. Despite my ability to maintain an exercise routine, I struggled with my diet and introduced a lot of sugar again. Then, my grandma did pass away at home on August 28, at the age of 99. I was with her by her bedside as she took her last breath.  I mention all this to paint a picture of what I feel led to my relapse. Maybe it had nothing to do with it, but to say I was stretched beyond my limits physically for quite some time now would be an understatement. I'm not complaining, I would do it all over again for her. But I do think it contributed to my immune system suffering a blow.  Maybe it's a total coincidence but, either way, it is what it is.

After my grandma was buried and all was said and done, I felt that crushing fatigue that is all too familiar. I blamed it on the grieving process and my body needing genuine rest that I had not previously had for a long time time. So I rested and went about with my normal routine. But week after week new symptoms would creep back in, with the migrating joint pain being the worst. I went for extensive blood work which, not surprisingly, showed everything was "normal". However, given my history and symptoms, I was started on a one month course of antibiotics. I added back in all of my herbal supplements and vitamins I was taking as well. 

Since starting the medications I feel 10x worse, which I remember happening last time. It's only confirmation to me that I'm on the right course with treatment. I'm trying not to let it get me down but it's so disappointing and discouraging. However, I hold on to my faith that I often write about, knowing the Lord is in control and has His purpose in this season. 

Sunday, January 1, 2017

Goodbye 2016!

It's been a long time since I blogged and I felt the desire to share how things are going now that a new year is upon us. It has been one heck of a year for me with so many things that have happened, it truly feels like several years have passed.  My sister keeps a "memories jar" every year and goes through everything she puts into it on New Year's Eve. She text me a picture on the last day of 2016 to share with me her recorded memory of us going out to celebrate the end of my Lyme treatment. I have to say it gave me tears not just because she thought enough to save that date in her jar, but also to see how far I've come.  Praise God!

As I go back and re-read some of the posts here on my blog, it amazes me what the Lord has done in my life and put on my heart to share in times past. I am so grateful for all the Lord has accomplished in me these past few years.  I am so thankful I started this blog and shared all He has done because it's my own personal account of His faithfulness in my life that I really need to read and re-read more often.

As of my last post, I had finished my treatment for Lyme and was starting to get my life back together, and praying for the best outcome off of medication. I'm happy to say that, six months later, I am doing really, really well with no relapse!  The first few months off of medication, my body seemed to still go through a cycle of every 4-6 weeks not feeling well and then better again, but my only real symptom was the fatigue and just feeling "off". I couldn't get back into any kind of aerobic activity or strength training without feeling too wiped out to face the next day. However, I was still way more than 50% better than ever and symptom free, so I kept plugging along. It wasn't until September of 2016 that I made the decision to cut all refined sugar out of my diet. (I have been told that sugar feeds the Lyme bacteria) At the same time, I was introduced to Pilates workouts online by a friend and decided to give them a try. Ever since I changed my diet and scaled back the intensity of my workouts, my healing has jumped from over 50% to just about 100%. I really credit the even more dramatic improvement to giving up sugar.  The past 4 months of Pilates and walking have been the first time in years I have been able to stay consistent with exercise and I feel better and stronger than ever.  I rarely need my afternoon naps anymore. I feel GREAT! I have even gotten well enough and strong enough to start hour long water aerobic classes that I am also enjoying!  I never thought I'd ever be back to the fitness level I'm at again, but here I am. Praise God!  I just want to be strong and healthy to have a body that's fit enough to serve Him and I know He is honoring that motivation.

I'm not sure I've talked much about care-giving for my grandma (who lives with me) on the blog, but I have been doing that full-time for the past 3 years. I took care of her before my diagnosis, during my treatment and now after being sick myself and that has certainly been a story of God's strength in my weakness in itself. This year has been a very difficult one for her health and has tried and tested me more than ever as well. She has had 3 hospitalizations, developed dementia, went from walking to wheelchair bound, and was even dying and on hospice just a few short weeks ago. God is not done with her yet though because He granted her a miraculous healing and she is home with us again (another long story in itself)!  Just as He used my sickness to shape and transform me, He has been using my situation with my grandmother to do the same.  She is 99 years old and will be turning 100 this November!

This past year of 2016 has certainly been one of the longest and most trying years, but I'm thankful for all the blessings too. While I'm happy to leave it behind at the start of 2017, I'm so grateful to look back on my healing, my grandma's many healings, all the ways the Lord has provided for us and the success of my Etsy shop! I'm still selling paintings to whomever the Lord leads to my store and that has been a blessing too. I don't know what this new year will hold, but He does. If the Lord had told me all I would endure last year, I would never think I could survive it all.  Looking back on not only surviving it all, but thriving, I know I can face anything that comes my way because He is with me.

Thursday, June 16, 2016

Living Word Decor on Etsy


I mentioned in my last post that I started painting and have really been enjoying it. I wanted to share some more information about that here.  

A few months back I started searching Etsy for wooden scripture signs to decorate our home. Since God's Word really transformed and healed me in so many ways during my chronic illness trial, I wanted to grace our walls with it. I found a few things we really liked and bought a few pieces; however, most of it was just too expensive. I got the idea out of nowhere to try and start painting some signs myself.  I say the idea was "out of nowhere" but I know it came from the Lord. I never considered myself crafty in any way but have had from time to time the desire to be! I dug out of the bottom of my closet an old tool box kit full of Apple Barrel paint samples my husband had bought me years ago (I knew I was keeping them for a reason ;)) and started painting some verses on scrap wood.  To my surprise, things were turning out okay and I was really enjoying myself!  Fast forward dozens of trips to Hobby Lobby later (for more paint, stencils, wood transfer paper, new paint brushes, spouncers, etc.) and I opened an Etsy shop full of some paintings and made my first sale as of yesterday!

I named my shop Living Word Decor, as God's Word is alive (Hebrews 4:12) and it also heals, gives life and peace, it transforms, it increases faith and accomplishes its purposes (Proverbs 4:22, John 14:27, Romans 12:2, Romans 10:17,Isaiah 55:11). We are commanded in scripture to keep His word before our sight (Proverbs 4:21) and what better way to do this, besides reading your Bible, than to hang His word on our walls to always see!

I'm posting a few pictures of some of my paintings. If you like them, please take a look around my shop (link above)! My greatest desire is to bless others with God's Word as it has so greatly blessed me.






Thursday, June 9, 2016

Lyme disease remission

I suppose this post is past due.  Just as the title says, I am officially in remission from Lyme disease! Praise God! At my last doctor's appointment, about a month ago, he declared me in remission and took me off the antibiotics (although I had already taken myself off them, more on that below). I am still supposed to be taking my herbal medicine (grapefruit seed extract, burbur, pinella, stevia, banderol & samento) but I'll be honest, I'm slacking in that area. I guess that's the part of me that just wants to be done with it all. I'm praying about it and seeing how the Lord leads me as to whether or not I should continue with all that stuff. 

Towards the end of my third month of treatment, I started having stomach issues at which point, my doctor added flagyl. I couldn't handle the flagyl so I took it upon myself to stop ALL antibiotics about 2 weeks shy of my doctor's appointment.  It was a gamble but I felt it was time.  I listened to my body and trusted the Lord. It only took about 24 hours after stopping the antibiotics for my stomach issues to resolve and to feel MUCH better so it was further confirmation that I made the right decision. 

Overall I would say it's been about 6 weeks since stopping the antibiotics and I'm still doing really well.  I'm just so thankful for having energy and not needing to sleep all day! I do still have days here and there where I'm tired and I take my afternoon nap but it's no where near (and I mean NO WHERE NEAR) how tired I used to feel!  My joint pain and muscle aches are gone, no more being off balance, no more daily nausea, no more insomnia, no more blood pressure issues (POTS syndrome), no light light/sound sensitivity, no more numbness/tingling/extremely cold hands & feet, etc., etc. I do still have my ocular flutter issue but honestly, I've learned to live with that.  I thank the Lord that it's not severe.  I supposed He is keeping that healing all to His miraculous self.  

I'm slowly getting back into working out, walking my dog most days and working on building back up my endurance. I've gotten into painting which I really enjoy and may share on here at some point in the future.  I'm just living life one day at a time and truly thankful for all that this experience has taught me.  On to the next season! 

Thursday, April 28, 2016

Lyme treatment, Month 3

I got some excellent news from my doctor at my last Lyme follow up a few weeks ago! In a previous post I had mentioned that some of my blood work, specifically the comp protein C4A test, showed high levels of inflammation in my body (my blood level was 19,000 and anything over 2,000 is considered abnormal inflammation).  Well, my repeat blood work after 1 1/2 months on antibiotics showed my blood levels have gone down to 747!!!  I can honestly say I'm not surprised because I have had a dramatic increase in energy and overall feelings of better health this past month.  My joint pain is all but gone, my energy has increased 10 fold, my blood pressure issues are so much better and more.  Even our friends and family have been commenting on how much better I look, and more "chipper". :)  My vestibular issues of feeling off balance and dizzy have even improved, although still there somewhat but I'll take an improvement!  I do still have the ocular flutter condition and am hoping that resolves soon as well.  I'm not expecting a miracle because I know I'm in this for the long haul, but I know my God is capable of all things! 

With all that said, I'm going through a major "herx" like reaction today since starting my antibiotics again after a week long break from them. I just keep telling myself, it's more bacteria dying! I noticed last month that after each bad day, I felt SO MUCH BETTER the next day and I'm just hoping for more and more improvement. 

In addition to my other medications I'm taking that I listed in my last post, my doctor has added Samento & Banderol. They are herbal medicines that he said I may need to take for life. It all depends on how things go. We're hoping this will be my last month of antibiotics but we shall see.  Aside from the herbal medicines, we discussed my need to adhere to a healthy lifestyle long term to keep the Lyme bacteria in check.  I stopped the Resvoxitrol and Crypto-Plus for now due to side effects (crypto gave me the WORST dry mouth I ever experienced and the resvoxitrol made me dizzy). I may re-introduce the crypto at some point and try again, but not now. 

All of my test results regarding my low potassium came back normal and my postassium levels are now back to normal so that's no longer a potential issue! 

I hope this post encourages someone by showing that it is possible to get better from Lyme disease! While I'm thankful for my excellent doctor the Lord has blessed us with and the medicinal regime he put me on, I have to credit my better health to my faith. I thank the Lord Jesus that I have Him to walk me through this and I pray that you will know Him too!

Saturday, April 9, 2016

Lyme treatment update

I've been through about a month and a half of treatment for my Lyme disease since I last posted so I thought I would give an update on how things are going. As far as feeling better, I can definitely see in some ways I am improving.  I have more energy on certain days than I have had in a long time and I can see my old self coming back! I still have days of feeling quite ill though, most likely from the treatment, and my neurological issues persist (the ocular flutter and dizziness/off balance). I know the central nervous system issues will take longer to resolve and I'm in this for the long haul!

As for my first month of treatment, I did very well on the antibiotic and herbal supplements. However, I couldn't seem to tolerate the Alpha Lipoic Acid, Glutathione and NAC so we discontinued those. My doctor thinks it may be an issue with sulfur intolerance but in any event, my progress doesn't seem to be hindered in any way by not taking those supplements. 

My second month of treatment started the day before Easter and we switched my antibiotic to Azithromycin and I have to say, it's not agreeing all that well with me but I'm plugging along. It certainly makes me nauseous (no vomiting though thankfully and it subsides within a few hours), and it also makes me dizzy.  It's hard to explain the dizziness.  I guess it's kind of like I just don't have my footing, but then I guess I'm used to that!  I'm still functioning well and dealing with it.

In addition to still taking all of the supplements I listed in my last post for my first month of treatment, my doctor added the following to my second month of treatment:

  • Azithromycin
  • Resvoxitrol (the jury is out on this one. I get extra "spacey" after taking it so I may not continue)
  • Crypto-Plus
  • Nystatin

Also, due to low levels:
  • Vitamin D
  • Vitamin A

In addition, I had some issues with low potassium in my recent blood work so we're exploring that as well and I will most likely be put on potassium supplementation at some point in the future. 

Overall I'm doing okay and like I already mentioned, I can see improvements in some ways. I definitely feel a lot more "off" though overall with this second month of treatment. I believe it's the new antibiotic so I'll be happy when that's done in 2 more weeks!